If you would like to contribute your story, please email us.
Lisa Montanera
We only learned about SUDEP upon the death of our youngest child and only daughter, Lisa. The tragic end of her precious life, the lack of understanding of why it happened, and what we could have done to save her will haunt us forever ...
Chris Smith
In the 7 years that Chris dealt with his epilepsy and in all the hospitalizations and doctor visits, nobody had ever mentioned SUDEP ...
Our precious Jordan, age 15, lived a short but very fulfilling life ...
Thomas Thorne
Thomas was my third born child and only son. He was the most beautiful baby you could imagine and he grew up to be a handsome young man. He had three mothers ...
Evan Bayko
June 6, 2011 was the worst day that a Mother could ever experience. How do you say goodbye, forever, to your son? ...
Hadyn Kivinen
Hadyn had an absolute zest for life and an infectious smile ...
Traci Cleverley Pink
My wife, Traci Cleverley Pink, passed away from SUDEP in November 2011, barely three months ago ...
Chris Hayduk-Costa
How can one adequately describe one’s son who is no longer living? In my case ...
Jesse Payne
On the morning of September 19, 2008, I knew there was something wrong. I could feel it...
Jayne Andrews
This is our beautiful and beloved daughter, Jayne Lyndee Andrews, who was ...
Adrian Webley
Sunday 29th May 2011 was the day that broke my heart; the day ...
Tyler Stevenson
Two years ago my 20-year old son, Tyler, passed away from SUDEP and I found myself ...
Sam Hardcastle
Thirteen years ago, I lost my daughter and her unborn son to SUDEP. This was the moment my life changed forever ...